July 25, 2010

Womb Twin Survivors Conference: all welcome!

I am told that the advance publicity doesn't make it clear that absolutely anyone, womb twin survivor or not, is welcome at our conference.  


( Sorry! rather distracted by writing the book about womb twin survivors.) 

Annual conference   October 1st-3rd 2010


"Womb Twin Survivors"

Venue: All Saints Pastoral Centre London Colney, Herts England. [web site]



This will be the third international OPEN SPACE conference to be held on this subject. It will be a rare opportunity for everyone to learn more about a common occurrence in pregnancy that has been largely ignored - until very recently. It will be a chance for womb twin survivors, plus the people who live with them, work with them, try to help them or just want to learn more about them, can get together and discuss these issues. Only 40 places are available, so early booking is recommended.

We need to know exact numbers for forward planning, so please register your intention to come as soon as you can : we can arrange payment later. (Payment by credit card or PayPal)

Our conference is YOUR conference!  Register here 

("Open space" means we can talk about anything we want, in 12 different spaces on the Saturday and Sunday, and you can come along and make a presentation yourself if you like if there is something special you need to talk about or discuss. I know that hoarding/clutter is one thing and food is another - what would YOU like to come and talk about? )

Comments please! 

July 23, 2010

Progress in Ireland....

Last week a poster advertising a lecture on Bi-polar caught my eye.   This was a chance to meet someone who was regularly treating womb twin survivors & was not aware of it.   This someone was pshychiatrist Dr. Patrick McKeown of St. Patrick's Hospital, Dublin.  Dr McKeown is also a director of Aware, an Irish Mental Health Charity.

When I arrived at the Swift Hall I met another of Aware's Director who told me that it would not be possible to see the Doc because he was so busy.  I gave her a copy of "Untwinned" with my contact details & implored her to get him to read it explaining that one in ten of the audience couple probably be treated without medication.  It was strange sitting with 150 people who probably depend on Lithium, Epilim or some other chemical concoction to keep them "balanced" when there was knowledge available that could set many of them free.

The lecture covered symptoms, treatments regimes, types of "BP" (bi-polar) & something called "co-morbidity" - essential two simultaneously occcuring symptoms. eg.  Suicidal tendencies & manic behaviour.  Dr McKeown said "Where these co-morbid conditions get in we don't really know ...."  Well, we've a good idea, haven't we?  
  
Anyway, I did succeed in meeting Dr. K who was aware of the impact of losing a born twin, but not the womb twin survivor phenomenom.  He is going to read the book so let's hope that results in more people being put our way & fewer to the pharmacy!





July 19, 2010

Hello From British Columbia,Canada

Blog post for July 20th 2010,

Sometimes life is such a funny thing. Not funny Ha ,ha, but funny, insert the theme song to the Twilight Zone, T.V. Programme. That old familiar high pitched 'nee ne, nee ne, nee ne, nee ne' my favorite television program of my childhood. Memories of a simpler time when the world was not yet plugged into cell phones, iPods, PC's, DVD's, CD's& MP3's. Over scheduled, over stimulated, and over loaded. When communicating actually meant having a conversation with out using abbreviations. AND with an actual person, either in person (wow, what a concept!) or at least on the other end of a telephone line. A time when kids actually respected their Elders, granted, maybe out of fear than out of respect. But respected none the less. Where the English language was actually a thoughtful and thought out experience. Not littered with slang and curse words. When going down to the corner store with 2 bits could buy you more junk food loaded with penny candies, than you could actually eat in one sitting. I miss those almost forgotten by-gone days of my childhood.

The other day I got a call from my niece, whom I miss dearly. Unfortunately she lives approx. 365 km from me ( or 3 1/2 hours through the Rocky Mountains ). Remarkably, she is a part time co-parent of four boys all aged 5 and under. Yes, she is a super-Mom in my eyes. Something she claims she learned of me. In this conversation she explained that she just needed some Auntie time, as it has been a while since we have had any quality time together. We have always been very close through the years. We have ALWAYS been there for each other through thick and thin. I was remiss at forgetting the intimacy of the familial bond. Years and years of shared memories, experiences, morel support and history. It's a rare luxury for us to enjoy over an hour long, uninterrupted conversation. ( Finding out that the boys were actually down for a nap.)


Ahhh, lovely nap time!


During the course of the conversation she brought me up to speed on the goings on in her busy life. She shared with me her recent ups and downs and challenges. She shared with me funny stories that can only come from raising 4 boys, which made me laugh till I cried.


One story in particular amazed me. My niece told me that for the past month or so, her son has been playing with an 'imaginary friend'. I told her that this is totally normal and that she had a friend when she was little too. (so did her brothers) My niece told me how one day she was in the kitchen when she over heard my nephew. He was splitting a gut, belly laughing his head off. Curiosity got the better of her so she had to go investigate. He was all alone in him room entertaining himself , playing cars. She asked him why was he laughing,? He said he was just playing with his friend. Later that day she asked her ex if he had noticed the boy playing with an imaginary friend. Well, not only had the boy been playing with his friend, but that they in fact play all the time and have great fun. My nieces' ex also revealed that the boy talks to him all the time about his imaginary friend. But refuses to talk to her about him!


My nephew revealed to his Dad that his friends' name is MICHAEL. My niece asked me if I knew anyone named Michael close to the family who had passed away. Shocked, I told her that my twins name was Michael! That her little son , who could never have known his Great Uncle THIS side of life, has unknowingly been playing with him for the past month or so! I was absolutely convinced, while my niece was struck silent. I was certain that my nephew was being entertained by my dear long dead twin brother.


All at once I was jealous that he was spending time with my nephew and not me! But in the very same instant I was happier than happy that Michael was still in some way claiming our family. Interacting with the youngest members as an imaginary friend. In spite of his absence in my life, he is a great playmate to my great nephew. Then as my nephew woke from his nap, refreshed,ready for lunch, and more play. My niece told him Auntie Leslie was on the phone, through the phone line I could hear his little voice. I told him to say hi to his friend for me, my twin brother, Michael. At that he mischievously giggled , a knowing giggle and hollered "No Way"! Giving me all the validation I needed. Confirmed

Yeah, life IS sometimes quite funny....

When we go and leave this world we don't really leave.

Live In Peace and Peace Will Live in You!

July 18, 2010

WombTwin.com Ltd

July 17th was the third birthday of WombTwin.com Ltd,  the non-profit organisation with members which  has initiated special support for womb twin survivors around the world.

A document telling the whole extraordinary story of the development of WombTwin.com  can be downloaded here.